Huge Archive

hi everyone this is tiger,,,,, bill is from my group in buffalo mn,,,,
please send him a hello thank u huggggggggs tiger

i just wanted to wish all the mom's in the group a happy mother's day. i
would also like to wish a happy mother's day to all the dads who have to be
both mom and dad to their kids. i'm hosting mother's day at my house -- 23
people!!! i'm sure my day won't be very relaxing. i'll never offer to do
this again during baseball season. we've got 3 games on saturday along with
concession stand duty, i'll be glad if i can get the house cleaned!!
kristie, i'd love to subscribe to your new magazine. you're lucky to have a
daughter who's willing to do this with you.
hugs to all,
donna d.

Sheri, How come you are getting more storms than me? I'm suppose to
be in tornado alley, they have all been east of us lately....uh oh
maybe I shouldn't have said that. Stay safe Sheri, just yell at your
cabana boy to cover you.
HUGS Cindy

Hi everyone,,,,, Bill is a stroke friend of mine from my little stroke group
I told you about,,,, so lets be nice to him ok?? hheheheh,,,,,just
kidding,,,,, were always nice aren't we kids?? hugggs tiger

ARE WE ON DETOURS, OR WHAT??!! AND MOST OF US SAW NO "DETOUR AHEAD"
SIGNS! THE VIEW IS INTERESTING, IF NOT ALWAYS ENJOYABLE.
BRIAN

Life is good, I got lucky my nephew showed up and is
taking me to the trolley. So I will be dry at least when I
start work...LOL.. Del

I know quite a bit about now too, thanks to your prompting! ;^)
I'm pretty good at web searches, have my own medical encyclopedias,
and access to technical journals... and I'm a quick study. I also
have a friend who had a brainstem stroke, (bleed) and the "only"
thing they could find wrong was that her foramen magnum
area was about 40% of the normal size. She didn't appear to have the
standard Chiari herniation of the cerebellum.
And it doesn't hurt that my job involves calculations of CSF flow in
the spine and brain.

Thanks Kristi...better get supper...I am worn out again...sheesh...wish I would
get over this!!
~*~*~*~*~*~*~*~*~~*~*~*~*~*~*~*~*~*~
A truly happy person is one who can enjoy the scenery on a detour

I WOULDN'T!!!
~*~*~*~*~*~*~*~*~~*~*~*~*~*~*~*~*~*~
A truly happy person is one who can enjoy the scenery on a detour

Join the group...that is why I haven't been on much...I can hardly walk
lately....Lord I hate it!
~*~*~*~*~*~*~*~*~~*~*~*~*~*~*~*~*~*~
A truly happy person is one who can enjoy the scenery on a detour

Cool!
~*~*~*~*~*~*~*~*~~*~*~*~*~*~*~*~*~*~
A truly happy person is one who can enjoy the scenery on a detour

Don't get me started on this...I could go on and on!!!
~*~*~*~*~*~*~*~*~~*~*~*~*~*~*~*~*~*~
A truly happy person is one who can enjoy the scenery on a detour

Michele that is how I lost...if one deprives themselves of everything when
you do loose what you want weight wise you have a tendancy to go nuts and
the other way ... As a former bodybuilder and aerobics instructor I've seen
alot of this...I learn that we all are different and can't depend on the
"diet" but look at food as a way of life and health...I've seen too many guys
and gals wanting a quick fix and that is impossible and stay healthy...
I agree that weight watchers really can be a good way to go...and from there
just watch how you cook, drink more water, watch what ya eat and maybe WHY
you have a tendency to over indulge...Genes sure don't help us
either...there is a gene that is deep in our thalamus that the scientist are
looking at now that may trigger our other genes to put our fat in high gear.
Many of us strokesurvivors are prone to this also...so if the scientist can
pin point it that would really help us alot....So right now as
strokesurvivors we are stuck...many of us can't exercise like we did one
time (brother it sure cramped my style!LOL!) and the biggest thing we MUST
do is learn to love ourselves like we are and accept ourselves...we can't
help what we have gone through...just learn a new life style... You are so
right...slow and steady wins the race...
Now I will get off my soapbox!LOL!
~*~*~*~*~*~*~*~*~~*~*~*~*~*~*~*~*~*~
A truly happy person is one who can enjoy the scenery on a detour

Harlan,
Syringomyelia is one disease I know ALOT about. We call it SM for short.
Another disease that often accompanies SM is called Chiari. That's Arnold
Chiari Malformation for long, and ACM for short. I will teach you about them,
but only if you let me know that you want me to. These are the two nasty
diseases that my hubby has. They bring lots of complications to life. Anyway,
have a good night.
Michele

when you send to address just do subject line=subscribe me

Hi, This is Kristi =]
My Daughter and I are starting a new online magazine called Stroke Alert
Monthly. I am the managing editor. Amanda is the co-editor and creator of. It
will be chock full of information, personal stories, product reviews and healthy
recipes. There will also be an option to email us with questions, comments or
suggestions which will be available for your viewing also. It's first edition
will be in June. If you would like to subscribe please click the link below,
hope to see you there
mailto:strokealert@...?subject=subscribeme

I am a BIG believer in Weight Watchers.....You can eat anything you
wish...just have to count your points....You might check into it
HUGS Cindy

My balance sucks majorly now, especially when i try to move my head
suddenly to the side or something, then it makes me fall :( Looking
up makes me dizzy, I had a brainstem too.

Loss of confidence? what about your self-esteem, self-worth, emotion
and anger control? These are just the tip of the iceberg. You have
to find whatever it is you're good at and do it as well as you can.
This improves the self-confidence levels greatly so does
accomplishments. It's been almost 4 years for me but has come
around greatly. Getting into public settings and doing things with
other people too helps to get you out of your house and back into
the community. It's very important that none of us become like
hermits. Too easy to feel sorry for yourself then. That is not a
good emotion for us.

I don't see how you do it Harlan. I'm scared to death of heights.

Frank,
We've moved "BORTON" from car to car since 1977. Your trick will be to find
a name not already in use, and there aren't many ways to vary "STROKE" or
"SURVIVOR"(maybe "SRVIVR"?)
Good luck, Brian

Hey all, I pose a question:
I'm thinking of getting a handicapped license plate for my truck, they have
a new plate with a small handicapped symbol in front of the numbers. I was
thinking of getting a personal plate, I can have six or seven letters, not sure.
I wanted something like SURVIVOR, but as you can see, it's eight letters. Maybe
STROKE or STROKEE. I was hopeing youguys could give me some ideas. Thanks,
hope all is well. Luv you all.
Frank

Johanna! I am so envious! Supination, even! I have zero wrist action, am
thrilled when I can stretch my arm without it folding across my chest.
Patience...
Brian

ASAP is American Syringomyelia Alliance Project.
Syringomyelia is a crappy disease that I don't wish on my worst enemy.

In a message dated 5/6/2003 4:46:38 PM Central Standard Time, poogolf@...
writes:
HEY CINDY, M,Y TEMP GAUGE OUTSIDE SAYS 91
CANDY

i just had one of the best days of therapy. my wrist supinated and
extended and my external rotators are now working! all i have left
are ,my fingers and the acupuncture, which went awesome, is supposed
to help w/ that. just thought i'd share a happy thought.
hugs, johanna

Del, Maybe this will bring you around..........Weather update
Oklahoma City 84
Des Moines (near Sheri) 70
Houston (Candy) 84
Detroit (near Kristi) 68
Las Vegas (Harlan) 71
Chicago 68
and DRUM ROLL............................
San Diego 60
YOU STILL GONNA HIDE DEL?

ASAP?? WHAT'S THAT?

Hey, Sarah. I have a heck of a time exercising, cause my right side doesn't
work so good. so I am now 300 pounds and very unhappy about my weight. And I
don't really overeat at all. so if you find a diet besides eating salads all
the time, I'd be thrilled. Timmy
Sarah Jane <sarahswart@...
hysterectomy...
Did I say that after I had the stroke (at age 25) a doctor discovered
I had mitral valve prolapse?
In any case, docs put me on an exercise program and diet that caused
me to take off about 20 pounds - at the time of the stroke (1987) I
was about 150 pounds, so when I got married (4 years later, to a man
I met after the stroke), I was looking good.
Well, now I'm around 200. Sixteen years is a long time to relax about
all the input you received when you experienced a critical
event...thing is, now I understand obesity can complicate
hysterectomy (and is a big risk factor for another stroke).
Is anyone feeling up to sharing about weight-loss strategy? I avoid
high-fat foods, always did, but I know I have a =big= problem with
portion control. And with depression, which is tied directly to
weight, imho!
Sheri, Cassie, and Timmy: I was astonished to see so many triad
members on this list, I am an adoptive parent myself (two children
with special needs, placed at ages 9 and 11). I self-identify more as
an adoptive parent than as a stroke survivor, in truth. But the
stroke is why my husband and I turned to adoption - hubbie was
unwilling to take a chance with my health.
Well, hysterectomy sounds like a big chance w/my health - anybody
know any data on stroke occurring during recovery from surgery?
- Sarah Jane
Love and Peace from Timmy

I'm the woman who now has to have a hysterectomy...
Did I say that after I had the stroke (at age 25) a doctor discovered
I had mitral valve prolapse?
In any case, docs put me on an exercise program and diet that caused
me to take off about 20 pounds - at the time of the stroke (1987) I
was about 150 pounds, so when I got married (4 years later, to a man
I met after the stroke), I was looking good.
Well, now I'm around 200. Sixteen years is a long time to relax about
all the input you received when you experienced a critical
event...thing is, now I understand obesity can complicate
hysterectomy (and is a big risk factor for another stroke).
Is anyone feeling up to sharing about weight-loss strategy? I avoid
high-fat foods, always did, but I know I have a =big= problem with
portion control. And with depression, which is tied directly to
weight, imho!
Sheri, Cassie, and Timmy: I was astonished to see so many triad
members on this list, I am an adoptive parent myself (two children
with special needs, placed at ages 9 and 11). I self-identify more as
an adoptive parent than as a stroke survivor, in truth. But the
stroke is why my husband and I turned to adoption - hubbie was
unwilling to take a chance with my health.
Well, hysterectomy sounds like a big chance w/my health - anybody
know any data on stroke occurring during recovery from surgery?
- Sarah Jane

Bill what is the date of the game again

I don't know who your note is to, but I live in East Chicago, Indiana, which is
40 minutes away from Chicago. I lived in Chicago for about 8 years but had to
move out here after my stroke for the rent. Timmy
Bbilldb@... wrote:
are you in the chicago area??

are you in the chicago area??

toni....
see you next on 5/14/03

Dear Michele,
No, I'm sorry. I don't even know what a ASAP site is.
take care,
Graham

Candy, That was my first thought but I don't think she is talking
about Hutch KS as she lives further up north.
HUGS Cindy

Yep, I ain't been on much today...I felt pretty good....so I thought...so I did
some cleaning found out I needed to rest...SHEESH!
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

DELL ARE YA SLEEPIN? OR ARE YA HAVING A PARTY SINCE YOU GOT YOUR FIRST
CHECK!!!!! DIDN'T YOU? COULDN'T REMEMBER!!!!!!!!! JUST WORRIED!
CANDY
In a message dated 5/5/2003 4:03:42 PM Central Standard Time, poogolf@...
writes:

Hey has anyone heard from Del? I sent him an e-mail and have not
heard back. As you all well know that is VERY UNLIKE Del. So I
thought maybe by posting this he might surface (afraid we might talk
about him)lol...lol....Don't you guys think so? So Del if you are
lurking out there you better let us know you are ok.
HUGS Cindy

Angie - any time you want to chat please do so - stroketalk or privately.
My addie is dsstar@....
Live in South Africa.
Take care
Henning van Aswegen

Hello,, step daughter had a seizure and had to get her to the hospital,,,,, she
is spending the night there,,,, so I've been gone all day. My neck has been
sore all day too,,,,, don't know why. If not better tomorrow I will get it
checked out too. Man always something,,,,, night all,,, hugggggs tiger

Thank u Harlan,,,,, never before,, first one and she has a bad bruise on her
cheek from where she hit the floor. They are doing some tests. Thank you for
your concern,,,, going to go find out how things are ,,,, I'll be on later
hugggggs
tiger

You just made me hungry for sweeties and goodies. lolol Timmy
candynkaty@... wrote:
THAT REALLY SOUNDS YUMMY!!!!!!!!!!!!!!!
CANDY

Brian, I totally understand. I was a typest from age 29 to age 41. About that
time I started working on computers and for the next 7 years made my living as a
computer technician, which I loved. I had them both taken from me after my
stroke. I can still type but I only have 3/4 of an eye now so I get tired
looking at print for long periods of time and I have a weird form of aphasia
where I type words that are different than I think. Isn't that odd? So I am
thrilled to have met a new friend in you. Yippee!!! Love, Timmy
bborton@... wrote:
Timmy: I'm happy to correspond! Sitting at my computer fills many hours of
my days. The toughest part is that my 36 years as an ace typist were lost to
me in a matter of moments with paralysis of my left arm, leaving a fairly
competent one-handed typist. I send a group letter 4 - 5 times every single
day to 35 - 50 addresses. if you want a faithful correspondent, Timmy, try
me at bborton@.... I always reply.
Brian Borton, who walked my block today in a desperate handgrip with my dear
Karen

In a message dated 5/4/2003 7:35:15 PM Central Standard Time,
cmbagwell71@... writes:
THAT REALLY SOUNDS YUMMY!!!!!!!!!!!!!!!
CANDY

Happy Birthday Henning!
Michele

Del, Well I wonder if YOUR Padres would let you do that??????
HUGS Cindy

well, its finally sunny here in cali, but still not as warm as it should
be. took a super long walk today w/ my dad, sis, and dog, felt
good. i have acupuncture tomorrow, so i'm a little nervous but not
really. i'm feeling really good and positive about my recovery, i'm
thinking when i get back to school, it'll be great for me. plus, my
best friend from iowa is coming out here for the first time on
thursday, very excited. i hope you are all having a great sunday,
i'm going to go help cook dinner. bye, hugs, johanna

May....stroke month...the minnesota twins will let us sing at the flag
song????
and will be on the field...if you watch the game on may 15, 2003 ...i'll,
we'll wave!!!

My idea of being perfectly relaxed: Huge, comfy
clothes; laying on the couch, feet propped up, with my
softest blanket, 80s CDs playing; smell-good candles
burning; and a HUGE milkshake made with Bryer's Mint
Chocolate Chip!!!! :)

cindy,
they tp houses in our neighborhood too. it usually has something to do with
SPORTS!!!!! alot comes from who wins/losses, chearleaders or even prom
stuff. hope it's not too hard to clean-up being all wet.
hugs,
donna d.
Subject: Fun Fun Fun
Oh $%&@ I just went outside and saw that we got toilet papered AGAIN
last night....BUT this time the sprinlers went on early this morning
and WHOA now he is going to have wet tp to pick up, I woke him up
and showed him and he said well so and so spent the night with so and
so last night. So I guess that might be who he suspects. I found a
little bracelet so we'll see who claims it.
HUGS Cindy

Sheri, Let this be a day for staying comfortable and taking it easy. There
is nothing more important on your agenda for today! Vertigo and weakness
cannot be ignored.
Brian, planning a restful day, too

In a message dated 5/4/2003 7:57:25 AM Central Standard Time,
sweetepetey@... writes:
KRISTI!!!!! YOU GO GIRL!!!!!!!!!!!!!!! YOU JUST GOT TO DO WHAT WE TALK ABOUT!
AND YOU'LL BE FINE
CANDY

Storms all around us...special effects...I don't feel real well
either. Terrible virtigo and weakness...going to rest today...Love ya
all...Sheri

In a message dated 5/4/2003 7:46:55 AM Central Standard Time,
sweetepetey@... writes:
HOW TRUE THAT IS KRISTI!!!!!!!!!!!!!!!!!
CANDY

Oh $%&@ I just went outside and saw that we got toilet papered AGAIN
last night....BUT this time the sprinlers went on early this morning
and WHOA now he is going to have wet tp to pick up, I woke him up
and showed him and he said well so and so spent the night with so and
so last night. So I guess that might be who he suspects. I found a
little bracelet so we'll see who claims it.
HUGS Cindy

Glad to see u have gotten up the confidence to talk freely among
us. Welcome again. I too was doing well walking last time I left
therapy but no my affected foot the heel won't go all the way down
to the ground. It turns on me and hurts my baby toe alot plus I
walk on my big toe mainly cause it hooks down :( 1 step forward two
steps back...story of our lives, lol.

Hi
I had a stroke November 21st 2002 and lost my confidence in the whole world
outside my front door. Read my story on walking home for the first time at
www.differentstrokes.co.uk message board -
David Hutchison
I would suggest walking with another person as I did to gain your confidence.
Walk outside your front door to put the litter out, then walk a little further
and then further, until you get to your goal.
After you have had enough trips with the other person and you are happy and
familiar with the walk, do it bit by bit yourself.
My mouth becomes very dry and I find it hard to swallow (I could not swallow for
12 days following my stroke and still have laboured swallowing) when I become
anxious.
./david

Hi to all,
I have been following your news group for a while now. I have never
joined a news group before but it seems like a modern day CB radio.
Let me introduce myself I am a 33 year old that had a stroke last
September. It affected my right side arm, leg and I lost the ability
to speak, though that is more less back now to how it was before the
stroke. I left Addensbrokes hospital on the 5th December last year.
I was doing really well 3 months ago, walking up to 3 miles a day
recently I have had a loss of confidence where my foot will invert
when I get apprehensive which will affect my walking. The local shop
20 meters across the road became impossible, and I was stuck inside
for 2 weeks. I use to be able to rely on my leg moving when I began
to fall, but now I just freeze to the spot. Has anyone else had this
and how did they over come it?
It would be good to hear from anyone,
Take care,
Graham.

In a message dated 5/4/2003 1:12:34 AM Central Standard Time, poogolf@...
writes:
Oh yes, it takes me about 2 hours to get there. So anytime sweetie!!!
Hugs
Lois

a life, whats that? lol i dont think i have one. i too hate weekends,
i don't drive and my daughter who lives with me is still too young
yet, and shes out most of the time, so i'm a bit stuck. i make myself
walk, every day, the distance depends how good i'm feeling. mostly i
wait for my mum and dad to come and take me places, like grocery
shopping, but they are so over protective that i feel i'm so
much 'iller' when they go home lol. Kristi my ex was very anti social
too, and one way or another over the years it was easier not to have
friends, which i deeply regret now-most days you guys at stroketalk
are the only contact i have, so its been brilliant for me. phew i
feel sooooo much better now i've got that whinge out. Thanks all!

Lois I was surfing around looking at maps and I didn't realize that
Wichita Falls is only 130-140 miles from us? We are certainly going
to have to make this get together SOONER than later.
HUGS Cindy

Paleeeeezzzzz! The old man is a sleep on the couch and I am going to bed
myself...been a long day...it was beautiful out though...
I used to keep score for my stepson (my second husbands boy) games...those were
the nicest kids but brother the parents!!! INCLUDING MY EX...I walked out one
game and told the UMP just what I thought of some of the parents...I guess he
stopped the game and made things clear...IT IS JUST A GAME!!! Let them have
fun...
Glad my own son didn't care about it...my daughter played basketball till high
school...then she just didn't have the time...she was in everything
else...played the chelo and sang in chorus and school plays...
Well Like I said...BED TIME!!!
PS Calvin is fixing brakes on his brothers truck tomorrow...ya know what he's
going to be doing when he retires besides hunting and fishing!!!
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

OK I finally had time to add the vital member statistics. Kristy
created it and I added everyone's info. Go to database and look
under the above. I didn't have all the info on everyone so if you
want to add anything or you are not on there and want to be OR I
forgot anything/anyone, etc., etc. just e-mail me at PooGolf@...
and I will get everything added and won't have to go back and pull it
off of each individual post. Was that plain as mud or what. If you
have any questions JUST ASK!
HUGS Cindy

Oh I haven't seen a problem with parents, YET! This is the first
mine has played baseball since 4th grade and he is playing very
well. Remember basketball IS his favorite. I was just glad because
he does want to play high school baseball and well, since they don't
have very many, everyone is welcome to play. My son referees soccer
though and he says parents of the younger ones are appalling.
Sheri it sounds like you had a busy day. Do you think you guys could
come down here next? Oh yeah and bring Calvin, Ray is going fishing
tomorrow. YEAH!
HUGS Cindy

Yes, I know it is Henning :) I go to my rehab doc again on that day,
getting a script for therapy.

Yep Kristi...that is good for a person...I got it today walking all around the
house...pulling hose so Ron could spray!
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

Cassie I adopted a son out when I was 18yrs. He would be 35 now...I had a judge
open the file to let him know what medical records of mine he should have...it
can be requested but it is up to the judge...they NEED medical information...
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

Hi all,
On 7 May (every year!) I have my birthday - through the grace of God I have
survived the stroke and I am grateful to positively try to change other
stroke-survivors.
Have a GREAT day!
:) Henning

Trains! I haven't been on one since spending two weeks traveling through
Great Britain in 1981, long before my stroke. I think karen and I should
look into doing some Amtrak travel, but I'd need assurance about
accessibility issues. Always that!
Brian

In a message dated 5/3/2003 11:10:32 AM Central Standard Time,
sweetepetey@... writes:
ITS ALRIGHT, JUST TELL HIM LIKE I TELL MINE, GET OFF YOUR ASS AND HELP ME ,
WHAT LITTLE I ASK FOR, CAUSE I WANT TO GO SOME PLACE OR JUST A RIDE. I'M
TIRED OF LOOKIN AT THESE FOUR WALLS, YOU KNOW IT COULD BE ALOT HARDER, I
COULD HAVE BEEN DEAD OR NOT ABLE TO DO ANYTHING. IT USUALLY WORKS, HE MAY GET
A LITTLE TIFFED BUT OH WELL
CANDY

You're right Candy, I'm very greatful to be alive to not only Mother
my children but help as many strokees that I can. My Hubby and
myself as everyone well knows now that him and I fight alot, it's
really starting to get to me though. Not too mention having to be
on the receiving end of his WAY paranoidness over me. Feels like
being suffocated or drowned.

In a message dated 5/3/2003 8:50:54 AM Central Standard Time,
sweetepetey@... writes:
KRISTI, MY HUBBY IS GUILTY OF THAT ALSO, CODDLING REALLY PISSES ME
OFF!!!!!!!!!! HE USUALLY TELLS ME NOT TO TRY THINGS BUT YOU KNOW ME I DO IT
ANYWAY, I THINK HE FINALLY GOT TIRED OF TELLING ME WHAT WAS BEST, SO NOW HE
KNOWS I AM NOT GOING TO LISTEN , SO WHY BOTHER. TRAINS ARE PROBABLY VERY
ACCESABLE I WOULD THINK AS LONG AS YOU LET THEM KNOW YOU ARE IN A WHEELCHAIR,
I HAVE NEVER BEEN ON ONE. I MEAN THE AIRLINES ARE GREAT WHEN YOU ARE
HANDICAPPED.
CANDY
MAN THAT WOULD BE GREAT FOR YA TO COME TO HOUSTON.

Hey? Why isn't anyone talking? Most of you have "a life" unlike me
I guess, lol. I'm sick of looking at how nice it is outside from
the windows. Hubby hates going anywhere with me because "it's too
much of a pain" to help me get ready. Crap all he has to do is put
my tennis shoes on me, help me walk across yard, which is very small
in that part, then we're free to go. He's very anti-social and I'm
just the opposite of that so don't mind me if I start acting a
little off, lol.

In a message dated 5/3/2003 8:36:05 AM Central Standard Time,
sweetepetey@... writes:
HEY KRISTI, WHAT YA MEAN YOUR ALIVE HUN!!!!!!!!!!!!!!!!! I KNOW I SOMETIMES
WANDER ABOUT THE WEEKENDS, THJEY USED TO BE FUN, BUT KNOW KINDA BORING, WELL
MY HUBBY HAS TO WORK ON SATURDAYS AND YES TV DOES REALLY SUCK..
CANDY

Glad we could educate someone Cindy :) now maybe the blockhead won't
scare you on purpose, lol.

I used to live for the weekends now I hate them cause most
businesses are closed on the weekend and t.v sucks :( Just stay on
here usually all day. Boy, lol, what an exciting life I lead.

"I was adopted, so I know nothing of my birth
parents."
Timmy, we adopted our son, so I know he won't inherit
my genetic coagulation d/o, but I always wonder what
he HAS inherited! Could be something worse. It's
very unfortunate that folks don't do a better job of
passing on a thorough medical history from the birth
parents of adopted children. Cassie

I am so use to all the residuals I have I don't know what is normal anymore!LOL!
Pathetic isn't it???LOL! I really don't think about it anymore...except when I
get the bouts of extreme fatigue...LORD that is bad...I never know when that
will hit or how long it will last..I just rest during these times....nothing
else can be done...your body tells you when, what and how much you can do...I
just follow it..
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

Someone mentioned something about having MSG the day of their
stroke...is there a connection? Cassie

I am with you Candy...I don't miss the misery at all...I get a few Hot Flashes
but heck that could be from my stroke too...my stroke hit all my major gland
deep in the cerebellum so hey, I can handle that...
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

There is always some kind of residual effect...some very subtle like your
vision..others more profound...depends on the part of the brain that is
effected...
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

Gee...isn't that funny how these things just happen...teeheeheehehehe!
I told him to quit making the website different everytime ya turned around...it
was confusing...it needed to user friendly is an understatement...good way to
loose people is making it as complicated as he did...truth hurt him...he could
never take it but dished it out!!
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

Good one Kristi...I like that website anyway!
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

"is true that there are =always= residual effects?"
I have absolutely no residual effects...that anyone
can see. I do have a grey "hole" in my vision. When
I am about a foot away from someone, looking straight
at their face, their right eye is totally missing to
me. Very strange and a constant reminder of my
stroke.
Regarding signs. I had NONE of the signs that they
say to look for. I woke up, opened my eyes, looked in
the mirror and could only see about half my face. I
got dressed, got my child ready for school and DROVE
(like an idiot) to work. A co-worker told me I needed
to go to the ER. I did and they did an eye chart test
- of course I got 20/20 b/c my acuity had not changed,
just me field of vision. They promptly referred me to
an optometrist. I was in the ER for about 10 minutes.
The optometrist ordered a CT scan which showed
nothing. It was kinda funny b/c I did not develop a
headache (in the lower back of my head) until the
doctor started talking about a CT scan. I told him
that HE was giving me a headache by talking about what
the problem could be (stroke or tumor). The MRI that
I had TWO WEEKS LATER clearly showed a clot in my
occipital lobe. My vision returned to normal, except
the "hole", in just a few days.
Now I know to consult a doctor with ANY unusual
neurological event b/c strokes don't alway come in the
"classic" form.
Afterward, I absolutely noticed that I forgot things
very easily - don't know if this was stroke-related or
stress-related. It got better in a few months.

you can use my photos if you think any are appropriate--did i spell
that right? hahaha. feel free to use any of them.
perry

Timmy:
My stroke came a few minutes past noon on a sunny Sunday in September 1999.
my wife was away for the weekend, and I was painting the front of the
house.. ii stopped to chat with a neighbor, and a few minutes later I keeled
over into my driveway. I had no warning until my speech became gibberish,
and I had no predisposing conditions. Even my weight was good, as I had just
shed 80 pounds. The neurologist here at our little hospital predicted the
Portland doctors would find a hole in my heart. She was right, as they found
a PFO in the wall between the upper chambers of my heart. It's still there,
but coumadin keeps my blood thinned to prevent another clot.
Brian, in sunny Astoria, Oregon

When did you have your stroke Brian? --Timmy

I received Stroke Networ's newsletter today and here is a good
example of how Steve likes to operate.
"Quote"
Probably the biggest improvement has been the addition of the Quick
Links web page. A member mentioned to me how difficult it is for him
to negotiate the dropdown menu. Nobody has mentioned this before as
being an obstacle to navigating the web site. Now, you can just
click on the Quick Links button on the homepage and then click on
the hyperlink of your choosing. The dropdown menu is nice for
navigating to all the important web pages on our site but now
hopefully everyone will have easy access
Hummm funny...I mentioned the same thing to him about a month ago.
I pointed out that I had some diffuculty navigating the site and I'm
an advanced user of the computer. I see he changed this. Good
though I'm glad he made it more accessible. I would rather remain
in the background anyway.

Great article the warning signs aren't always sudden but gradual sometimes
building up to "the big one" just be aware of yourself. An ounce of prevention
is worth a pound of cure. Article:
http://www.strokeassociation.org/presenter.jhtml?identifier=3011360
Stroke News
May is American Stroke Month
Deadly Denial: What baby boomers should know about stroke
Truth: Stroke can occur at any time, at any age, to anyone. It¹s important
to recognize the signs of stroke and seek treatment. Never dismiss the
signs of stroke because you believe that someone having symptoms is ³too
young.² In addition, while some people are at a lower risk for stroke than
others, those who have the highest risk have a combination of factors that
may include a family history of stroke, existing cardiovascular conditions,
high blood cholesterol, high blood pressure, a history of heart attack or
stroke, tobacco use and age greater than 55. If you'ree overweight or obese,
you should follow sound dietary advice and engage in physical activity to
control your weight and reduce your risk of stroke.
Know the warning signs of stroke and teach them to your family and friends.
The more people who recognize stroke, the better off you are if you have
one. If you recognize the signs of stroke in yourself or another person,
call 9-1-1 immediately to get to a hospital quickly. The signs of a stroke
are:
*
Sudden numbness or weakness of the face, arm or leg, especially on one side
of the body
*
Sudden confusion, trouble speaking or understanding
*
Sudden trouble seeing in one or both eyes
*
Sudden trouble walking, dizziness, loss of balance or coordination
*
Sudden, severe headache with no known cause
Visit StrokeAssociation.org to learn more about stroke and take the
interactive stroke pledge. Fill out a confidential risk assessment and
learn more about risk factors and solutions, then discuss that information
with your physician to reduce your stroke risks.
Watch your television for new stroke public service announcements. Stars
Patrick Dempsey, Michael Clarke Duncan, Penny Marshall, Don Rickles and
Sharon Stone portray a stroke to teach Americans about the warning signs of
stroke in a new campaign from the American Stroke Association and Ad
Council.
For additional stroke resources, visit StrokeAssociation.org or call
1-888-4-STROKE.

Noise and lots of people in one room make me want to run screaming...I take an
extra diazepam when we have family gatherings...
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

No our stroke effects us in many strange ways...This should be addressed
though...KRISTI...YOU ARE NOT ALONE...we are here!!! It is scary as HELL!!!
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

Sarah...I had a hysty before my stroke...I was taking some estrogen but not
much...they don't know what caused my stroke either.
I get along fine without the med...I feel better too..or just as good...It
really isn't worth the headaches to have female problems adding to your already
stroke problems...and as far as hormone treatment I feel the same way...that is
not worth messing with...Just my 2 ents...everyone has their own idea and
whatever works for you, DO IT!!
Welcome aboard...glad to have you so spout off or whatever you need to do.
Kristi has a great place here and we are here for you whatever it may be...Sheri
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

I'm starting to recognize patterns in my behavior :O I was really
depressed for about 3 days last week, now I feel like going on and on
and my typing gets faster, I talk faster, come up with all kinds of
ideas that never get followed through with. I'm in an up mood now
have been for past 2 days. I'm medicated but still have bi-polar to
a slight degree. This is crazy...

Hi Perry, I can go to your site and copy you pics and put on here :)
if ya wish.

In a message dated 5/2/2003 7:31:14 AM Central Standard Time, poogolf@...
writes:
CINDY, I HAVE SEEN ALOT OF DRIVERS THAT DO THINGS LIKE YOU HAVE DONE. AND
THEY HAVEN'T EVEN HAD STROKES.
CINDY, I FIND IF I TRY TO RUSH TO GET TO WHERE I NEED TO GO,I SEEM TO NOT
HAVE A VERY GOOD RESPONSE MODE,BESIDES THAT MY TONE SEEMS TO GET WORSE. SO I
TRY TO MAKE SURE I ALLOW FOR PLENTY OF TIME TO GET WHERE I NEED. JUST TAKE
YOUR TIME!!!!!!!!!!!!!!!!!!!!!!!!!!!! TO HELL WITH THOSE OTHER DRIVERS. DOES
ANYONE ELSE HAVE THAT PROBLEM?
CANDY

Hi Folks.
I am new to this list. I had a stroke in 1987 (age 25), no cause
identified. I was a smoker, had MSG for lunch that day, was on my
period (1st day that day), and got migraine headaches...many
contributors, no single reason established. Image technology now is
much more sophisticated!
I'm posting because now my OB-GYN says I need a hysterectomy. The
only other option is to go on hormones, a no-no for stroke survivors.
Has anybody here undergone a hysterectomy after a stroke? Anything I
should know?
Also, my PCP says he does not believe I had a stroke (confirmed
in '87 by spinal tap), because he sees no residual effects. I have a
facial twitch that does not show up often; I did not mention that. Is
is true that there are =always= residual effects?
- Sarah Jane

I was driving a couple of days ago and I was sitting at a stop light not far
from my home. I always turn right at that light to come home. Well I found
that I had just put the car in park instead of putting the turn signal on. I
realized it as soon as I did it. The car behind me probably thought I was
crazy, BUT OH WELL! My husband said "I'm sure their are a lot of people that do
that". I don't care about that, what worries me is what if I do it while
actually rolling down the street? SCREEEEEEECH!!!! I HATE DRIVING NOW...
HUGS Cindy

thanks Kris.
./david

Here I am the CABANA BOY....LOL...I'd much rather net hair out of pool

CINDY YOU CAN GIVE ME A HARD TIME, ANYTIME. WE ALL LOVE YA!!!!!!!!
CANDY
In a message dated 5/1/2003 9:19:00 PM Central Standard Time, poogolf@...
writes:

Candy, the dogs remind me that we got Fancy her annual shave today.
After we opened the pool the other day she got in and hair was
floating everywhere soon after. So buzzzz today. She looks so silly
too! The pool guys were barely out of the driveway the other day
before she jumped in. brrr still to cold for me...I need a pool man
or cabana boy...Sheri do you know where I can find one? LOL LOL
HUGS Cindy

It is so nice to put a face with a name.....I'm glad you FINALLY
found someone nice enough to post your pics. Kristi did a great
job....and yes, Candy I'm giving you a hard time....LOL
HUGS Cindy

Tiger...I'm soooo glad you are back I've missed ya. Congrats on the
new grand baby and I hope you spoiled her rotten and then left her with
Mom and Dad... LOL...I was wondering where you had been and I think
someone reminded me where you went....DUH... how could I have 4got?
Must have been a stroke moment...LOL
Anyway WELCOME HOME!!!!!
HUGS Cindy

In a message dated 5/1/2003 8:39:56 PM Central Standard Time,
sweetepetey@... writes:
SAME WITH ME 37, HEALTHY NOT OVERWEIGHT ACTUALLY A LITTLE UNDERWEIGHT, LIFTED
WEIGHTS, WORKED OUT 3 TIMES A WEEK, GUILTY OF SMOKING AND DRINKING AND ALOT OF
STRESS, WHO KNOWS WHY? YOU KNOW WE ALL SHOULD TRY TO GET ON ONE OF THOSE
TALK SHOWS ABOUT MIRACLES, BECAUSE I THINK THE MAJORITY OF US HAD STROKES THAT
WE SHOULD NOT HAVE SURVIVED!!!!!!!!!!!!!!!!!! THANKS KRISTI FOR DOING MY
PICTURES FOR THE BOARD! YOUR SUCH A SWEETHEART.
THANKS AGAIN
CANDY

In a message dated 5/1/2003 8:36:23 PM Central Standard Time,
sweetepetey@... writes:
THATS NICE TO KNOW, THATS HOW YOU HEAR ABOUT OTHERS. THEY ARE ALWAYS NICEY
NICE TILL THEY DON'T GET THEIR WAY.
CANDY

Yes a stroke can strike at anytime. I had a history of blood clots,
smoking and drinking heavily, otherwise very healthy though and
stroked at 30. Go figure? us as a group make up a pretty sizable
group for the new faces of stroke

Candy, I still speak to Steve and work with him occassionally on
business proposals, site feedback and helping other survivors out if
I can. Steve, however, is very diffucult to work for on a full-time
basis. HE is the boss there and let's mainly every volunteer worth
a crap go because he throws what I would call a tantrum every so
often.
I can never volunteer exclusively for his site anymore but won't
take his shit.

Sorry David, dur, here it is http://www.crpf.org/

yes they say laughter is good medicine. for me that is
so true.think I'll get all dressed and ready for work
than lay down...LOL...I slept last night good but only
was able to sleep 3 hours this afternoon.This cold I
got sucks.I'm going to be pacing myself tonight real
slow.I have no energy and sore throat.I can't miss
work.I just need to make sure to put jacket on when I
go outside on my breaks.I went to Ralphs store and got
my May bus pass, got home and realized I needed to get
some cough drops.Maybe I'll remember to leave for bus
a few early tonight and stop at store around corner
from bus stop. Del

OMG, I startle at stupid things like a bark, cough,or closing door
etc, I'm terrible, yes Angie it is a "stroke thing" lol

johanna <johanna-weakley@...

You bet Cassie...look at my photo's..I was a body builder...
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

"I am the poster child for "a stroke can happen to
anyone."
Me too Harlan. I was 30, great diet, regular
exercise, no medical problems, low blood pressure, and
small frame/size. Never suspected I had a blood clot
d/o or a hole in the heart. Not until I woke up with
more than half my vision gone. It sure put other life
"problems" into perspective. Cassie

BlankWhew! We just got home from our week away. Karen is pooped from driving up
the coast, though it's a beautiful day for it. We stayed at such a nice Best
Western on the Central Oregon Coast. It was totally accessible, had a great
outdoor pool, and the view of the ocean from the second floor was super. Waffles
for breakfast were a hit. Last night we spent some time feeding five-dollar
bills into the casino slots. Lots of fun, but it's great to be home!
Brian
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

about startling, or that sudden jumping. since my strokes i've
experienced it on a practically daily basis-i jump and my affected
hand kind of stretches and my fingers go dead straight-the only time
i can do that. sometimes i wake myself up doing it. reassuring that
its a 'stroke thing', i thought it was just me.

Oh no Angie...you sure aren't alone!
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

meeting was good,I met 2 new people.The lady running
the meeting is a survivor,she has loupus.Another lady
was giving birth when they found out she had a vein
burst in her brain.That was on Sept. 11 at time world
trade center got hit. Del

Hi Johanna...I sure hope it clears up so I can post some...good day for me for a
change..Calvin went fishing too....
He is sooooo anxious to retire!!
~*~*~*~*~*~~*~*~*~*~*~*
AiSv Nv wa do hi ya do
"Walk In Peace"
Tsula Asgayagigagei
Lightening Fox

Tim,
Which one of my kids do you want? The 15 year old, or the 12 year old?
lol
Michele